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14 yr old Boy Suffers from Rare Genetic Disorder That has Killed 5 of his Family

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Meet this 14-year-old boy has been left with the body of a 110-year-old in India because he has a rare disease which makes him age eight times faster than normal.
Ali Hussain has seen five of his siblings die from the same condition called Progeria which is known to affect just 80 people worldwide.
Two of his brothers and three of his sisters have died from the disease in Bihar, the poorest state in India.

Ali’s parents Nabi Hussain Khan, 50, and Razia, 46, are first cousins and were the product of an arranged marriage 32 years ago. When they were 18 and 14 years old respectively.

Progeria causes rapid ageing and sufferers of the genetic disease are prone to arthritis, eye problems, heart disease and baldness.
Sufferers are not expected to live much beyond the age of 14 – but despite the grim prognosis Ali has refused to give up hope.

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‘I very much want to live and I hope there is medicine for my condition out there. I’m not scared of death but my parents have suffered a lot,’ he said.

‘I’d love to live much longer for them. I don’t want to burden them with any more pain.’
Their children Rehana, Iqramul, Gudiya and Rubina have all died from Progeria between the ages of 12 and 24.
A fifth child, a boy who died within 24 hours of being born, is also thought to have had the rare condition.
Nabia and Razia, who have had eight children in total, do have two healthy daughters – Sanjeeda, 20, who is married with two children of her own. Their youngest daughter Chanda, 10, also does not have Progeria.
When their first daughter, Rehana, was born in 1983 they had no idea anything was wrong at first. It was only after her second birthday when she couldn’t eat or walk properly did they visit a doctor.
But the doctor was baffled and he sent them home with some medicines. Progeria was so rare and poorly documented that most doctors had never heard of it.


Sanjeeda is the one in red who is now 20 and married
Nabi Hussain Khan, 50, and his wife Razia, 46, have had eight children and six of them have suffered from Progeria.
Their first child was Rehana, a girl born in 1983 who died from Progeria in 2007 aged 24
Their second child Iqramul was born in 1987 and died in 2009, from Progeria aged 22
Progeria sufferer Gudiya, born in 1989, died in 2004 aged 15
Progeria sufferer Rubina, born in 1992 and died in 2004 aged 12
Sanjeeda, who is now 20, was born without the killer disease and is now married with two healthy children of her own
Progeria sufferer Ali was born in 1999 and is 14
The couple had an unnamed son who died within 24 hours of being born. They claim that he was also killer by Progeria
Their youngest daughter Chanda, aged 10 is also healthy

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AFRIMA mourns Mohbad, call for institutions in African music industries

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All Africa Music Awards, AFRIMA, has emphasized the importance of regulating and institutionalizing the music entertainment industry as it joins millions of African youths and music fans to express grief over the demise of Nigeria’s singer, Mohbad, (real name Ilerioluwa Oladimeji Aloba).

Mohbad died on Tuesday, September 12, 2023, in an event that has generated massive public reaction.

The 27-year-old budding music star also known as Imole (Light) was a young and very promising artist whose creativity and amazing gift have made him produce highly thrilling lyrics that have warmed the hearts of millions of fans across the world.

The President and Executive Producer, AFRIMA, Mike Dada, in a statement, while lamenting that Africa has lost a promising talent in its growing music industry in a shocking manner, noted that institutionalization of the music/entertainment industry remains a top priority in curbing the unprofessional practices that have been existing within the industry in Africa.

He said; “On behalf of the International Committee of AFRIMA, we condole with Nigeria’s music industry, parents and fans of Mohbad, over his painful demise. The death of Mohbad is a tragic event that has left us all deeply saddened. Our thoughts and prayers are with the family and loved ones of the deceased during this difficult time.

With his demise, Africa has lost a promising talent in our growing music and entertainment industry. We pray God to grant him eternal rest and grant his parents, family, and teeming fans the fortitude to bear his irreplaceable loss.

AFRIMA is spearheading efforts to mobilize stakeholders in the creative industry in Africa, with a focus on Nigeria, to establish institutionalized operations and regulate the music entertainment industry.

It is necessary to have a law that regulates the music industry to prevent it from becoming an unregulated free-for-all, as currently, the entry requirements are low such that anyone can just wake up and establish a music record label.

To address this issue, African countries must establish a Music Institute to certify practitioners regularly.

AFRIMA urges stakeholders, including relevant government officials and agencies, artists, record labels, A&R, producers, promoters, artiste’s managers, brands, songwriters, DJs & video vixens, video directors, equipment production and rental companies, publishing companies, streaming service companies, entertainment lawyers, royalty companies, choreographers/dancers, entertainment/music journalists and media, culture and music enthusiast, other supporting professionals: cameramen, editors, make-up, hairstylist, costumiers, among others, to participate in this crucial process. We urge stakeholders to submit their proposed legislation for review and consideration.”

AFRIMA’s concerns echo the call for justice for the late musician whose passing has created suspicion of foul play. The Nigerian Police are currently investigating the circumstances surrounding Mohbad’s death as the public keenly awaits the outcome.

Musicians and celebrities from Nigeria and internationally including Kodak Black, Lil Durk, and Meek Mill have all paid tributes to the late Street Hop sensation whose music has enjoyed a resurgence in the streaming platforms in Nigeria.

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‘I regret tattooing your face on my lap,’ Mandy Kiss berates Naira Marley

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Nigerian skit maker and brand influencer, Mandy Ayomiposi Oluwada, popularly known as Mandy Kiss, has said she regrets tattooing the face of rapper Naira Marley on her thighs.

This comes following the death of Mohbad, a former signee of Naira Marley with allegations linking the Marlian boss to the sudden death of the singer.

Reacting via her Instagram story, Mandy expressed regrets for idolising the Marlian Music boss.

She wrote, “I regretted the day I tattooed ur face on my laps, Naira Marley.

“You’re a big m*ss.

“Best day of my life is June 30 d day I erased ur face.”

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Burna Boy postpones South Africa show, says production team are yet to be paid

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Grammy-award-winning Nigerian artiste Damini Ogulu, aka Burna Boy, has canceled his highly anticipated live concert due to the promoters’ inability to fulfill their contractual obligations.

Burna’s live concert was scheduled for September 23, at the FNB Stadium in Johannesburg, South Africa.

Buran’s statement is coming after Ticketing company, Ticket Pro, announced Wednesday that the highly anticipated show, is being postponed due to a ‘lack of ticket’ sales, among other reasons.

“We regret to announce the postponement of the highly anticipated Burna Boy concert scheduled to take place at FNB Stadium, Johannesburg on 23 September 2023.

“The concert will now take place on the 16th of December 2023.

“This decision was not made lightly by the promoter and comes as a result of careful consideration and assessment of various factors, including the lack of ticket sales,” read the statement by Ticket Pro.

Spaceship Management, Burna’s management company, has since reacted to this claim by Ticket Pro, stating the concert promoters’ Ternary Media Group’s failure to fulfill their financial, production, and technical obligations to the team.

“Sadly, it is with great regret that we must inform you that despite my team’s effort, the show in Johannesburg on September 23rd, will be canceled due to the inability of the promoters to fulfill their contractual, financial, production, and technical obligations.

“Production vendors have still not been paid and as such, it is evident at this point that the agreed production standard needed for this venue size can not be achieved.

“We hereby state that all ticketing companies must ensure that is refunded in full.

“Deepest apologies to all fans, looking forward to seeing you all soon,” their statement read.

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